The Drive at 35

Author: Andy Lipman
Publisher: Dunham Group
ISBN: 9780983745693
Format: PDF
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This is the inspiring account of Andy Lipman's life with cystic fibrosis and the candid story of a young man finding his way in the world, despite big challenges. Cystic fibrosis affects seventy thousand people worldwide. In the United States, thirty thousand people live with cystic fibrosis and each year several hundred die as a result. When I was born in the early seventies, life expectancy for those with CF was in the teens. It is Andy's declaration that everyone, including medical professionals who told him he could not live past the age of 25, was wrong. This is the story of a competitive person with a life-threatening disease-the story of a person with hopes and dreams, just like everyone else, who must also deal with extraordinary circumstances. Andy writes about how he has dealt with depression for most of his life and the negative effects it has had on his family and loved ones. His purpose in writing this is to raise awareness about cystic fibrosis and to help fund cystic fibrosis research.

There Are No Alligators in Heaven

Author: Donna Codell
Publisher: Starshine Galaxy Foundation
ISBN: 9780990854722
Format: PDF, ePub, Docs
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Using Jennifer Hale's own writings and images as well as interviews with Jennifer's parents, Evan Michael Codell and Donna Codell, presents the life and experiences of Jennifer Hale and her family as Jennifer lived with cystic fibrosis.

The Power of Two

Author: Isabel Stenzel Byrnes
Publisher: University of Missouri Press
ISBN: 9780826266040
Format: PDF, Mobi
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For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology. Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.

Academy Street

Author: Mary Costello
Publisher: Farrar, Straus and Giroux
ISBN: 0374712751
Format: PDF, ePub
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A vibrant, intimate, hypnotic portrait of one woman's life, from an important new writer Tess Lohan is the kind of woman that we meet and fail to notice every day. A single mother. A nurse. A quiet woman, who nonetheless feels things acutely—a woman with tumultuous emotions and few people to share them with. Academy Street is Mary Costello's luminous portrait of a whole life. It follows Tess from her girlhood in western Ireland through her relocation to America and her life there, concluding with a moving reencounter with her Irish family after forty years of exile. The novel has a hypnotic pull and a steadily mounting emotional force. It speaks of disappointments but also of great joy. It shows how the signal events of the last half century affect the course of a life lived in New York City. Anne Enright has said that Costello's first collection of stories, The China Factory, "has the feel of work that refused to be abandoned; of stories that were written for the sake of getting something important right . . . Her writing has the kind of urgency that the great problems demand" (The Guardian). Academy Street is driven by this same urgency. In sentence after sentence it captures the rhythm and intensity of inner life.

The Glorious Heresies

Author: Lisa McInerney
Publisher: Tim Duggan Books
ISBN: 0804189080
Format: PDF, ePub, Docs
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From Lisa McInerney, hailed by The Irish Times as “arguably the most talented writer at work in Ireland today,” comes The Glorious Heresies, a searing debut novel about life on the fringes of Ireland’s post-crash society. When grandmother Maureen Phelan is surprised in her home by a stranger, she clubs the intruder with a Holy Stone. The consequences of this unplanned murder connect four misfits struggling against their meager circumstances. Ryan is a fifteen-year-old drug dealer desperate not to turn out like his alcoholic father, Tony, whose feud with his next-door neighbor threatens to ruin his family. Georgie is a sex worker who half-heartedly joins a born-again movement to escape her profession and drug habit. And Jimmy Phelan, the most fearsome gangster in the city and Maureen’s estranged son, finds that his mother’s bizarre attempts at redemption threaten his entire organization. Biting and darkly funny, The Glorious Heresies presents an unforgettable vision of a city plagued by poverty and exploitation, where salvation still awaits in the most unexpected places. — New York Time's Book Review's "10 Best Crime Novels" of the year

Alex

Author: Frank Deford
Publisher: Open Road Media
ISBN: 1504007336
Format: PDF, Kindle
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A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.

Eggshells

Author: Caitriona Lally
Publisher: Melville House
ISBN: 1612195970
Format: PDF, Mobi
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"First published in 2015 by Liberties Press."

The Last Four Days of Paddy Buckley

Author: Jeremy Massey
Publisher: Riverhead Books (Hardcover)
ISBN: 1101983388
Format: PDF
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A dark and unexpected novel about a Dublin undertaker who finds himself on the wrong side of the Irish mob. Paddy Buckley is a grieving widower who has worked for years for Gallagher's, a long-established--some say the best--funeral home in Dublin. One night driving home after an unexpected encounter with a client, Paddy hits a pedestrian crossing the street. He pulls over and gets out of his car, intending to do the right thing. As he bends over to help the man, he recognizes him. It's Donal Cullen, brother of one of the most notorious mobsters in Dublin. And he's dead. Shocked and scared, Paddy jumps back in his car and drives away before anyone notices what's happened. The next morning, the Cullen family calls Gallagher's to oversee the funeral arrangements. Paddy, to his dismay, is given the task of meeting with the grieving Vincent Cullen, Dublin's crime boss, and Cullen's entourage. When events go awry, Paddy is plunged into an unexpected eddy of intrigue, deceit, and treachery. By turns a thriller, a love story, and a black comedy of ill manners, The Last Four Days of Paddy Buckley is a surprising, compulsively readable debut novel. From the Hardcover edition.

Breathe

Author: Jake Shavers
Publisher: Lulu.com
ISBN: 9781304684028
Format: PDF, ePub
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Breathe: Living a Purposeful Life with Cystic Fibrosis (c), is the inspirational autobiography of Jake Shavers. At 41 years old, Jake Shavers is beating the odds. Born with Cystic Fibrosis, a genetic chronic disease that affects the lungs and digestive system, he bravely fights the debilitating illness. Given the statistics, he was not expected to live to see the age of 20. Even now, he has faced and conquered near-death experiences 5 times. Against all odds, including a double lung transplant and a kidney transplant, Jake continues to thrive. His positive attitude and conviction in his faith gave him the strength and courage to compete in a half-marathon, exercise daily and give back through his work with children and adults facing similar situations. Jake attributes his success to his faith and knows he is here for a very special reason.

The Apostle Killer

Author: Richard Beard
Publisher: Melville House
ISBN: 1612195806
Format: PDF, ePub, Docs
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A wildly inventive, darkly suspenseful novel that pits Christ’s “Passion as police procedural” (The Guardian). Set in a hazy Middle East that seems at once ancient and modern, The Apostle Killer features Gallio, an aging, hardboiled investigator who has one last chance to save his career: He’s got to prove Christ’s resurrection was a hoax. To uncover the conspiracy behind the so-called resurrection, Gallio figures all he needs is for one of the apostles to crack. The only problem is that one by one, the apostles keep dying—and in ever more grotesque ways—just before Gallio gets to them. Racing to save both his case and the witnesses he needs to solve it, Gallio begins to suspect he’s become the unwitting pawn in the plot to kill the apostles . . . but who’s behind it? And to what end? As Gallio realizes even his own superiors are not to be trusted, The Apostle Killer transforms from a dazzling literary experiment into a moving, haunting work of art.